It's official: The introductory paragraph to my upcoming book: "Never, never quit". It's edited from my earlier writings, but it's what I submitted to the good folks editing my publication in the UK. Also, I wasn't quite up for writing an original piece for today, so forgive me, if only because it's Monday.
I
never wanted to write a book about myself. I don't think I'm that
interesting, I don't think I'm worthy. Perhaps one day when I'll
accomplish something extraordinary I'll earn a right to write and
publish my memoirs. Don't discount me yet, I'm a body of progress.
Yes, I have a story- but so does everybody else. Each of our lives is
a fascinating journey. No one's is better than the others. Yet,
everyone these days seems to be writing a book. Some people even
write books about their experiences with books written by other
people. I remember reading about a man who followed every advice from
Oprah Winfrey's guide to a better life and then published a volume of
his own. Recently I watched a segment about a woman who followed
Martha Stewart's tips for a year and then decided it's interesting
enough to share it with an audience. Yes, I could write a book about
how my parents fought hard, against the communist system to make me
better. Or about what it's like to have this disability and be in a
wheelchair all day. But then, I have long struggled to have Cerebral
Palsy not be the one thing that defines me. If I'm ever worthy of a
book, it will be because of what I accomplish, not because of who and
what I am. I see a growing trend among people with disabilities to
sit down and publish their stories- printed books, e-books, you name
it. Everybody is writing something, but just because you have been
through something it doesn't mean it needs to end up on coffee
tables. I don't think I'm special, I'm just living my life. I don't
think I'm unique- I have Cerebral Palsy and I think I'm making the
best out of a situation I didn't choose for myself. I think in
general people write too much and don't read enough. And then- they
don't simply live enough. Live for themselves, rather than looking
for a crazy new literature ideas.
Yet,
when Andrew Sutton asked me about extracting some of my blogposts for
a book about Conductive Education, my years in Budapest and the
aftermath- I agreed. I will not be writing a new book to boost my
ego. This will be a collection of my musings on rehabilitation,
growing up with Cerebral Palsy and what I remember from my childhood-
things I have already written. He sees value in bringing it to a
larger audience- while I wouldn't think of it myself. As I go
back and forth on my blog between my childhood and adulthood and
how they're connected, they have selected about a quarter, a third of
my writings for the publication through Conductive Education Press in
the UK. My posts were never a journal- I jump through time, themes
and concepts often within a single text and I'm not sure how they
will be able to put it together to have a coherent narrative or a
flow. My blog is never simply about one thing or another. Sometimes I
write about things that don't go well with anything else. One day
it's about my childhood. The other - about something that happened on
the street, the statement I'm making, the idea that I got on a walk
or the coffee maker that I bought. Yet, through my years of
rehabilitation, what it was then, what means now and I have reflected
on it I've gained a perspective that perhaps parents of children with
Cerebral Palsy can find useful. Because nobody ever thinks about what
it's like to be the child. I also thought about to what extent can
you separate those aspects of my story from everything else. Would
you still have an undistorted picture without all the context that
makes me who I am? Will people understand me and can it be a
compelling read? The Conductive Education Press will provide only
slight editing to the material. I'm a bit curious how one can make it
work. Currently at 40 thousand words it's expected to include
pictures and other artifacts from my life. It's not a biography. Just
a collection of pieces of mind, memories, opinions at the time they
were written. Some concepts I've revisited and restated when I wanted
to make sure some ideas came across properly. My first book. But how
do you pick a title? How do you choose the right pictures? What can
I say. I'm a busy bee. Between the very few clients I've been dealing
with, an opposing counsel whose filings forced me to redo a month's
worth of work and saying good bye in a meaningful manner to the cast
of our visiting summer musical, there was one more thing I needed to
get to. As I go forward clearing pressing matters off my desk this
was one of the things I actually dread it. As the time approaches for
me to head over to Germany to talk about my life with Cerebral Palsy,
it will also mark the release date of my book. My first and most
likely only contribution to the world of literature. The thing seems
to be coming together. I've seen the manuscript. It actually looks
like something you could put on your table. But there was one
essential ingredient missing. The title. I wanted something that
would make a statement. That would speak volumes about me when you
looked at the cover. No pressure. Just something as simple as all
that I am about, what the purpose of it was and why this was put
together. I still have my reservations about this publication and how
it flows. I fear that when you read it, given how random it is and
how tied to the frame of mind I was in while writing every bit it
will not make much sense. It is not a book I've written is a sense of
sitting down and committing words to paper. It doesn't have the
continuity of an autobiography or a novel. The bits and pieces are
selections from my blog with hardly any introduction or transition
between the pieces. I needed a title that reflect that. A collection
of thoughts rather than a homogeneous volume. Two people have sent me
the ideas I liked the most. I wanted to somewhat combine them. Susie
Mallet liked the title of my blog and a brief comment I made about my
blog and how I see it as a collection of states of mind. Andrew
Sutton suggested "Never, never quit" which is lifted from a
title of one of my postings. Funny thing- I read it on a Monster
Energy drink can. But it does tell my story and in ways is my motto.
My life in so many ways has always been about trying harder, reaching
further, fighting, kicking and screaming, not taking no for an
answer, getting in through the window when they show you the door.
And my true belief that if you stick through it long enough, people,
things and events will come into line. Everyone will see your true
colors, because who you are is always enough. So: Here it is. A
title. Too long to fit in a Twitter message, yet I'm very pleased
with it. I hope you will be as well.
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Excellent! Looking forward to purchasing your book!
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