I live in what you can call a high end apartment complex by Gainesville standards. It has the nice Victorian windows, the premium downtown location- which is close to shopping and restaurants but equally near to the city's homeless. The historic feel, although for my wheelchair it means more and more getting the front wheel stuck in the cobble road, the convince of many buses. You pay a hefty premium for the location- the walls are thin, the apartment may feel moldy at times, no utilities are included, the countertop finish feels and look cheap, but at least you can walk or wheel places. The complex is one of the most expensive in the Collier's portfolio and for years and years the rent went up. At least I could have said that I felt like, as much as I paid to be here, they cared for my tenant experience. I don't know what happened in the last year or two, and it's of course extremely subjective and some may find it unfair, but I don't think they care anymore. Maintenance crew used to pick up my trash from in front of my door- that was part of what the management agreed to do for me as I first moved there as I'd have to get over a step if I wanted to carry my garbage myself to the collection site. They stopped checking. The wheelchair ramp they built for me is now missing some bricks and makes it a bit harder to wheel over it. A few weeks ago I had my dishwasher unscrew itself from the cheaply made sponge like countertop that seems to expand with moist- tilt and fall on me a few times. I have not had a good run at this unit- which was supposed to be an upgrade. On day one I was faced with a dishwasher that had a dead motor. It was then replaced with what I can only describe as one of the cheapest appliances on the market. This may sound silly- but for weeks I regretted the switch as the one I left behind had a sanitize mode, while the new one often left my dishes wet and smelly. I know, you shouldn't make a decision about a move based on a dishwasher, but to me it's a good indicator of how much they valued me as a tenant. But what gets me the most is how the management tends to plan ever inspection- sprinklers, fire alarms, fire extinguisher- a day or two in advance as if it's something they could not have figured out with adequate notice. Don't people have jobs? In strikingly similar fashion they plan special events, typically designed to get you to renew your lease. I know, I know.... I don't have to be there, but then I don't like for strangers to be in my apartment- with my valuables, credit cards, sensitive documents without be being there. I have more technical crew in my apartment now than I used to when I stayed at a "student living" property from the other end of the spectrum in Collier's portfolio- and they were allowed to inspect my bedroom over there every few weeks. Did I tell you about the things that don't work? During the Thanksgiving weekend I was stuck with a loud window unit as my AC gave out. It was a loud little machine that had a pipe you've put outside your window. The AC unit itself was so old that when it had a Freon leak it had to be replaced and couldn't be fixed. Knowing my struggles with that, the management had the bright idea to schedule the replacement of the water sprinklers in my apartment the next day. Not only did I again- have strangers in my apartment three days in a row, that seemed to be surprised with everything they found in my AC closet or ceiling (how old can it be?), but after making a few holes they made a mess and just left. I felt I shouldn't be the one to clean after them, to get on my knees from my wheelchair and clean the drywall off my kitchen floor, so I did insist they come back and clean it and they did- a week later. All of this - and not even an apology, not mention any kind of rent concession. I'm in a wheelchair- if you make a mess and just leave it, I will just track it on my wheels all over the place. Nobody seems to care- and that to me is the worst part. And with rent going up every year and me growing more and more disenchanted with Arlington Square the time will come that the cost of being here will not be justified by the experience. It hardly is this year- but they make you decide by the end of February. Even though I don't like it, I will most likely renew my lease. Because I'm in a wheelchair and moving far is always a complication that I will avoid if I can. Getting people to help me, packing, unpacking. I didn't even have time to look for a suitable place. And for now, it still has some value for me to live Downtown. I'd say not for much longer though. But I doubt that anyone cares. They were too busy leaving renewal notices and candy at my doorstep to ask about my actual experiences.
Friday, February 27, 2015
Sunday, February 22, 2015
On Friday I did something I don't get to do very often. I took one of my best suits out of my closet, I put it on and for a few hours I posted for pictures to remind everyone that I'm first and foremost an attorney. I might be in a wheelchair, I might run a non profit and be a disability activist- and between all those other things it's easy to forget that in many ways I'm just like the people you find behinds the desks of big law firms. I have three law degrees and I'm licensed in two jurisdictions. Unfortunately, my wheelchair doesn't help to get that point across, it doesn't scream "capability" or "power". So when my Foundation's creative director requested to see some new pictures of me, she opted for a more traditional look. It's been a year since I had my headshots taken and they were outdoors. It seemed like a fun idea at the time, but it wasn't practical and much of it was not usable. And of course she had a point. "You're very... unconventional"- she said or something to the effect of a nicer way of saying that disability, wheelchair and cerebral palsy is not something people traditionally associate with the word "lawyer"- so we have to put you in the most traditional of legal settings. She will then use those pictures not only on the foundation's website, but for a page she's been putting together for my upcoming law practice. I can help my foundation and myself best if I establish myself as a lawyer in my community first. People need to start seeing me as an attorney. "If you were more known as a lawyer, then we could have played around with a more modern setting and environment"- she explained, but I got the point and I agreed with it. We needed a law library and an office, a suit and a tie, play down the wheelchair, play down the disability. It took a while to set up, between the photographer I hired and a friend who had an appropriate location to put their schedules together.
Unfortunately, I don't have a law office of my own, but the place we went to was perfect. You couldn't help but be impressed between the wooden bookshelves filled with tomes of Federal Reporter and the big conference table that still impress you although you know nobody really uses books for research anymore, but this sends the right message. A lawyer works here, doing what other lawyers do. And I wish I could say I felt we were staging something, but although the tablet and the netbook I brought were not even charged and served as props I felt I belonged there. This is the type of a law office I will have one day. And although the books were probably mostly for show the wooden finish on the walls, the bright light coming into the room had my crew in awe of this scholarly atmosphere and the vast legal knowledge contained. It's about projecting the right image, the wisdom, the skill, the experience and I've made first steps to have people seeing me differently. Yes, I hate pictures. I gave the photographer quite a task to figure out how not to make me blink, as I'm faster than the flash and the camera shutter sound, I say it's quite a talent. And yes, I hate wearing suits, but I'm always in one when I go to a courthouse or an agency so I don't wear them often. It's easy for things to twist a bit in different directions when you get in and out of a wheelchair. It's easy for a jacket to get caught in my wheels and buttons don't make me feel comfortable. But the underlying message I want to send is to all my future clients is, I can help you and you can trust me. And to get there I need to build my image up a bit. And yes, sometimes this means pretending to be on a phone for a picture or pointing to things on a screen that isn't there. Because what matters to me, as fun as it is to dress up, smile, not smile, make faces once in a while - is that underneath the clothes I know I do a good job. But people often don't get to see it when they look at me, because my image doesn't go along with what I have done and what I will do for other people. One thing is certain- it made for a unconventional Friday afternoon.
Thursday, February 19, 2015
My non profit has long struggled to find it's identity. The logo said "DAAF", the full name added below itwe called it FDAAF and there is the word "Florida" in the Foundation's full name. The image was prepared with the future in mind I guess, but the truth of the matter is, while we dream of having some of our products down the line to expand nationwide, we don't expect this to happen for at least the next two or three years. And we can't allow for what we are doing right now to be tainted by some illusive vision of the future. We have to focus on the "now", otherwise there will never bee a "then". I did tell my Board members to dream and think big. But I what I didn't mean was to do those big thigs right out of the box. My goal was to not let our size or local scope limit anybody's creativity. But we are a Florida non profit. I think that when we were looking at the logo, a perfect opportunity for national branding, combined with the actual need for more accessibility and more awareness of disability rights and issues not only in Florida, but across the nation we got over excited and ahead of ourselves. And we also thought, a logo is just a logo, it's only a piece of graphic, a brand, we can do it whatever we want it to be. We are not gonna get "there" anytime soon and I'm find with that. There's nothing wrong with being local, there's nothing wrong with being connected to a smaller community. I wouldn't probably go as far as to focus on Gainesville or the Alachua county, but the state gives us plenty of people or projects to work with. It's perfectly fine to not think of what we're doing now as a stepping stone, although we'll continue to think of ways to do more and help more. I'm perfectly content running a nonprofit that isn't planning to be a big national institution and just do our work well. Whatever happens, happens. But for now, it's a big sigh of relief for us as I feel we're pretending to be something we're not and overextending ourselves. The naming and branding was confusing for everyone. Our webdesigner, our PR person and ourselves as we were figuring out in what terms to talk about it. There's nothing wrong in admitting that we are small. That we are here; That we are local, that we will work on small budgets at least for the next 2-3 years which is as far as our planning takes us, not to get us somewhere else but to get the projects done. Our Creative Director unveiled our new logo a few days ago. It now features the letter F before the DAAF, a change you might find is cosmetic, but that signifies our change in direction. That we are happy to be "here" and "now", that there are things that we need to do, before we can even think of doing anything else and if we don't ever get there, that'll be fine too. It was our mistake to push a brand that was one thing, but meant something else. Thinking about that duality just took time and energy. Well, no more. We hope to avoid getting our sponsors, volunteers, donors and the media all confused. Florida, we're coming home.
Monday, February 16, 2015
Today my non profit is a 501(c)(3) charity. We have the Florida solicitation license and we are exempt from the state sales tax. Our USPS rate application for tax exempt entities is ready to be sent off and we're looking into getting a permit to fundraise at the DOT rest stops and Welcome Centers. My Creative Director just revised our logo and gave us our new letterhead. We have claimed and edited our presence on GuideStar and Causes. There are people working on our website. It's moving forward and although it's unfortunate that it's actually live as people add content to it, it will be done in a week, maybe two. We have secured our Google Grant with Youtube and Ads components as well as got involved with TechSoup for some software solutions. And I know see that this is where it actually starts. We have built the foundation to actually build a Foundation. With all the elements we need, we are finally becoming a "real" nonprofit. And I know that I've expressed this sentiment in many other ways before, but having that bare minimum now made me think of how much talent we've wasted along the way, because we were not ready to receive what they could give us. Because we couldn't give them what they needed to in turn do what they do for us. Over the last few weeks I've been mostly filing applications and receiving permits. I know that our Director of Resources is putting together a strategy to get us the funds we need. I don't know what it is yet, but whether she plans to focus mostly on grants, send volunteers off to public highways, have an event, an online fundraiser or do a mailing campaign I want us to be ready. I want her to her pick of going any route she can think of and give her any fundraising tools I can. This in turn made me again think about the time that we were in flux, that we weren't ready, that -I think- we recruited some of the most professional volunteers prematurely, wasted their skills and their time, frustrating them and ourselves in the process. Two people that stayed on board av year later are my Resource Director and my creative. I think quite frankly that we didn't have our vision formed at those stages yet, and it may had been a nifty idea, but it was incredibly unfair to have anyone else step in to figure it out for us. I've also learnt that not everything I was planning can be accomplished with volunteers. It was our Linked In recruited Creative Director who pointed out that building a software developing team- something a recruiter can take weeks to put together may not be the best idea, their good intentions aside, using randomly matched volunteers with different schedules, skill-sets and tempers. (FDAAF main mission was to develop an app for the disability community). She then suggested we go at it another way. Strengthen our core charity fundraising activities, recruit volunteers in that direction instead and find a way to pay for it. With her we also developed a new project strategy. What we want to build as our minimum mission over the next three years. There'd be more of course if funding permits, but if there isn't we'd be content with that. Our volunteer management strategy has also changed. No more recruiting everyone all at once. They'll come along as needed, as we develop more in certain areas. No more expecting other people to come in and give me answers I should have about my organization and the things I don't know. With all those coming together, it's an exciting time for me- I see possibilities. I see where we can take this if we do it right. And it seems to me we are finally doing what we're supposed to, instead of waiting on a volunteer to come in and magically fix our non profit. The FDAAF website is not much to look at yet, it doesn't have a donate button, but it changes everyday. The only active recruitment operation we've had in weeks was "content writer" and I think we're set for the moment. Either way, if you visit http://fdaaf.org you'll see my dream come to life.
Friday, February 13, 2015
Many dogs are not used to a wheelchair. And it's something that pet owners easily forget or don't realize. Since it's something they've never seen before they either find it scary or intriguing. I noticed most react in one of three ways, and each one has the owner embarrassed and apologetic if their pet passes me on the sidewalk or even sees me from a far. Some freeze, panic and refuse to move. The man sitting in this thing with big squeaky wheels must be a terrifying encounter The owner calls the dogs name, then yells it, then pulls on the dog's leash. Then he ends up having to pick it up if it's a tiny animal or somehow move it, because all it sees and all it's focused on is the chair. Then, there's the protector. How do I know my neighbor from the building across is walking the dog? I hear it as soon as I go outside my door. It's barking loudly, all it has to do is see me and it must be really confused when its owner is trying to get it to be quiet. It's being such a brave dog after all, defending its owner from the strange wheeled machine. And I guess don't really understand how brave dog is and how strange the chair must be, because it doesn't give up or look away, or get quiet. This when you get your typical "I don't know why he/she does that, he she usually loves people. To most dogs I'm not people. I'm a sitting down hybrid with big wheels. And then there's of course the type that considers everything that rolls and turns a play thing. Throwing itself at the wheels of a bike or a wheelchair, pounce as if it was a big toy. My good friend has a dog who had known me and my wheelchair for as long as it can remember. This resulted in it having no self protective instinct as it sees the wheelchair rolling its way. The puppy would get on the wheels risking me hitting it or rolling over it's paws as it would get dangerously close to stick its head everywhere. You never know with dogs.
So imagine my hesitation when my former neighbor invited me over to his new apartment to work on some copy for the Foundation's website. I knew he recently picked up a dog from the pound. The one he had before liked me or at least tolerated me, while it wasn't as fond of the people I brought along. I have never met this one, though. My neighbor had the good sense of taking it for a walk to my apartment as I was getting ready. That way his puppy got to meet me in a neutral setting. Wow. Is that the friendliest dog I have ever met. Between all the licking, leaning on my lap and running he wouldn't leave me alone. As we were working the puppy wouldn't come down for a minute. My neighbor explained that he was looking for a less outgoing dog and in the pound this candidate looked more reserved. Boy, was he wrong. His dog got so excited that he had a guest that he had get put away in his crate, just to let us work. And then wouldn't stop crying. It's worth nothing though that medium to large sized dogs are usually more calm with wheelchairs and the small ones in my experience make a lot of noise.
Wednesday, February 11, 2015
Sunday, February 8, 2015
On Sunday afternoon I was set to do shopping like I do every week. I try to get to the bus stop at 3:30 at the latest, as the last run home is at 5:30 and I'd be stranded otherwise. I find that two hours is just enough to grab a sandwich and get some groceries. The bus usually comes every thirty minutes. Didn't come this time. I figured I just missed it. No big deal, I can wait a bit longer. Another 30 minutes goes by and I see my bus taking a left turn instead of going straight down like it does every day. What's going on? Is there a detour? Have the adjusted the route? Is there a bicycle race or an art fest that they shut down certain streets for? I check the Gainesville Sun website to figure out if there's an event in town I haven't heard of. Usually, when a bus stop is temporarily closed there's a notice attached to it. I looked at it, but there was nothing. I looked at the one across the street. Nada. I decided to look for information on the transit system's website, they usually post raider alerts on closures and changes but there was not a word on it about it. I texted by bus driver friend to ask if she new what happened with most of the buses downtown (some others occasionally showed up, mostly on the other side of the street). She said she didn't know. If it was a planned event she'd get an an email about it, but she didn't, maybe it was an accident? An accident... I thought and decided to wait a bit longer. It was after four already. I figured I was not going shopping this week after all. But then a driver from a different route saw me across the street and asked if I was waiting on bus 1, which I was. I asked her if she knew why it wasn't coming, she said, she didn't know, but she would call it in. Some twenty minutes later she shows up on my side of the street and says the supervisor is coming to pick me up in a van. She still didn't know why. The supervisor did come out with a van and drove me to the shopping center. As it turned out, GRU- the utility company asked for a last minute closure of some streets that morning. I still don't know why some buses were driving up and down third avenue, while others didn't but at least I got to the store. The bus service really came through for me as I was ready to go home. As I got to Publix I had an exactly one hour to get back to that stop. I've never done it before, but hey I like a challenge. Grabbed some items in a hurry, spent the least I had in weeks, but if I have my protein bars, energy drinks, coconut water, vegetable juice, cold cuts and cheese I'm happy. I went to a sandwich store, but with 25 minutes to go I didn't really have time to sit down and chew so I took it to go. The driver apologized and apologized although none of this was his fault and I didn't really mind and he wondered if he should have used the business card I gave him to text and warn me. One thing that I do think about all of this is that the city should really have a better way of communicating between all of its bodies and branches. It's not some external company planning this, it's all Gainesville. Overall, an interesting day. Not something I'd ever expect as I went to bed last night.